Our Story

Our Story

It is hard to talk about how and when William got here without talking about Aiden.  Aiden was our first son, our first pregnancy.  A pregnancy that we thought everything was going great with, until 20 weeks when I went into labor.  Within hours from the beginning of labor, I delivered him.  Our son, Aiden, was born alive and died within minutes.  He was just too little and born too soon.  We got pregnant a couple months later with William.  If we did not have Aiden, the doctors never would of known to keep an eye on me, they never would have known that they needed to make interventions.  And William would not be here today.  I often wonder if Aiden was so pure that he would give his life so that William could live.  I like to think that.

So, William, better known as Lil Bill, was born at 23 weeks and 1 day gestation on 8/31/12. He was born weighing 1 pound 7 ounces and 11.25 inches long.  He had about a 25 percent chance of survival   He was literally the size of a beanie baby.  During those 5 months, espeically at the beginnning end it was touch and go.  We had some very scary moments, we did not know if we would be bringing Lil Bill home with us.  When we were pregnant and found out it was a boy we referred to him as Lil Bill, being that his dad's name is Bill as well.  When he was born so small the name seemed to fit him even more and that is how he was known in the NICU and still known today.  During the first couple days there, we found out that he had a grade 4 brain bleed.  When the doctor was telling us about it, she said that this might be the only time we have with him, so to get involved, take lots of pictures, and make it feel like home.  That was very hard to hear at the time, but looking back I am very grateful she said that to us, because that is exactly what we did.


After a 5 month stay in the NICU he came home at the end of January 2013. Since then he has been hospitalized multiple times for surgeries and illnesses. We have also received several diagnosis since leaving the NICU.  He has airway diseases and a lung disease as well as spastic quadripeglic cerebral palsy. He receives physical therapy, feeding and speech therapy, and occupational therapy, each multiple times a week.  He has auditory neuropathy spectrum disorder (ANSD), a hearing disorder and brain damage.  


Though he has many ongoing issues and struggles and his future is unknown still he has come so far and tries so hard.  His will to live and strength is beautiful.  He is the happiest person I know.  He is truly an inspiration for us and we invite you to be a part of our story.